General

Fabry 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

Topic	Views	Activity
About the General category General	854	December 8, 2017
7 Things to Look for When Choosing a Doctor General	120	May 18, 2023
Spotlight on Our Moderators General	119	March 30, 2023
“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness General	125	March 29, 2023
When “Rather Rare” Becomes “Done Well” General	117	February 22, 2023
Ben Munoz shares the story of Ben’s Friends in RARECast General	125	February 20, 2023
Our New Ben’s Friends Classroom General	126	January 26, 2023
Ben’s Friends Brings Learning About Patient Support to the Next Level General	87	January 17, 2023
Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool General	92	January 17, 2023
Spotlight on Our Board Member: John Stamler General	44	January 17, 2023
Heads up! Happening soon General	136	January 6, 2023
Spotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community General	88	December 28, 2022
Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends General	129	December 23, 2022
Ben’s Friends Communities Can Help Advance Medical Treatments General	113	December 8, 2022
Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic General	107	December 8, 2022
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	97	November 24, 2022
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	72	November 17, 2022
Ben’s Friends inks partnership with ClozTalk General	68	November 17, 2022
The Ben’s Friends Volunteer Family is Growing! General	448	July 31, 2020
Rare Disease Diagnosis: Difficulties and Advancements General	112	November 3, 2022
Global Genes’ Rare Daily website features Ben Munoz General	108	November 2, 2022
Some of Ben’s Friends secrets to maintaining healthy communities General	82	October 31, 2022
What’s Your And? Podcast features Scott Orn General	125	October 27, 2022
Depression and Autoimmune and Chronic Illnesses General	388	November 18, 2020
Benefits of Having a Rare Disease and Chronic Illness Support Group General	114	October 20, 2022
Once Upon a Gene podcast Features Ben’s Friends General	112	October 6, 2022
Ben’s Friends Lead Interns General	124	October 5, 2022
Nonprofit SnapCast features Ben Munoz General	79	October 4, 2022
Two Disabled Dudes Podcast features Ben Munoz General	114	September 28, 2022
How Ben’s Friends moderators work as a team General	119	September 27, 2022