General

Fabry 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

Topic	Replies	Views	Activity
About the General category General	0	925	December 8, 2017
Looking For Your Fabry Disease Stories! General	1	163	January 10, 2024
7 Things to Look for When Choosing a Doctor General	0	297	May 18, 2023
Spotlight on Our Moderators General	0	277	March 30, 2023
“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness General	0	283	March 29, 2023
When “Rather Rare” Becomes “Done Well” General	0	199	February 22, 2023
Ben Munoz shares the story of Ben’s Friends in RARECast General	0	208	February 20, 2023
Our New Ben’s Friends Classroom General	0	213	January 26, 2023
Ben’s Friends Brings Learning About Patient Support to the Next Level General	0	133	January 17, 2023
Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool General	0	163	January 17, 2023
Spotlight on Our Board Member: John Stamler General	0	90	January 17, 2023
Heads up! Happening soon General	0	215	January 6, 2023
Spotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community General	0	129	December 28, 2022
Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends General	0	196	December 23, 2022
Ben’s Friends Communities Can Help Advance Medical Treatments General	0	184	December 8, 2022
Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic General	0	182	December 8, 2022
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	0	170	November 24, 2022
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	0	117	November 17, 2022
Ben’s Friends inks partnership with ClozTalk General	0	106	November 17, 2022
The Ben’s Friends Volunteer Family is Growing! General	0	519	July 31, 2020
Rare Disease Diagnosis: Difficulties and Advancements General	0	187	November 3, 2022
Global Genes’ Rare Daily website features Ben Munoz General	0	177	November 2, 2022
Some of Ben’s Friends secrets to maintaining healthy communities General	0	128	October 31, 2022
What’s Your And? Podcast features Scott Orn General	0	200	October 27, 2022
Depression and Autoimmune and Chronic Illnesses General	0	463	November 18, 2020
Benefits of Having a Rare Disease and Chronic Illness Support Group General	0	195	October 20, 2022
Once Upon a Gene podcast Features Ben’s Friends General	0	178	October 6, 2022
Ben’s Friends Lead Interns General	0	198	October 5, 2022
Nonprofit SnapCast features Ben Munoz General	0	119	October 4, 2022
Two Disabled Dudes Podcast features Ben Munoz General	0	183	September 28, 2022